7 month pictures

Too cute

Look at my foot :)



JJ in his high chair waiting for num nums

Sorry delayed health update

I realized it had been a week since Joseph's appointment and I never updated our blog. The appointment went well, I really liked the people up at Children's Memorial. The specialist agreed with everything that had been done at Primary Childrens, which is always good to hear. She said the time had come to get the genetic test done to see if Joseph has frustosemia. The problem is that our insurance doesn't want to pay for it and it is really expensive. We are currently battling them and hope to hear something soon. The doctor's office has been great and is really working with us to get this test done. He has a follow-up appointment in November where we will test his blood work to see if his liver enzymes are normal.

My family and I had some sad news yesterday. Monday night my uncle passed away after a long battle with Lou Gehrig's Disease. Steve wanted to make it to his youngest daughter's wedding, and he did. She was married last Saturday, and Steve made it to the ceremony. I am always amazed how much the will to live can make a difference. I cannot remember a time when Steve wasn't smiling and making people laugh, even throughout his disease. We will miss him a lot, and our thoughts and prayers are with his wife and his children. We all lost a great man, but I am glad he is in a place where his disease can no longer hurt him.

Health Update and other stuff

I have had a few people ask about Joseph's health so I though I should give an update. There isn't too much that has happened since my last post. I finally was able to get some answers regarding his blood work. Although his enzymes are still elevated Dr Book (liver specialist at Primary Childrens in Salt Lake) is so happy that they have dropped that far. She said I could start him on his rice cereal again. So Joseph is having a little bit of sugar once a day in his rice and oatmeal cereal, and he seems to be handling it alright. His next appointment is on Tuesday with Dr Alonso (liver specialist at Children's Memorial in Chicago). I am trying to convince someone to do his blood work again so we will have recent results for his appointment. It would suck to drive all the way up there and have the doctor say there isn't anything she can do with month old blood work. We appreciate everyone's thoughts and prayers throughout this whole experience.

In other news we went with my parents to Lincoln Park Zoo on Labor Day. It was a lot of fun, and it wore Joseph out. He wouldn't fall asleep in his stroller so he was a tired boy. If you are lucky, one of these days I'll post some pictures. Joseph is also now mobile. I turn my back on him for 2 seconds and he seems to find the something to get into. Matt is doing well at law school. His classes are starting to go ahead full steam and soon Matt will be completely buried in his law books instead of just being in neck deep. He is also looking into various IP law societies to join, which means he will be more busy but it is good connections.

I think that is about it for updates here in the Divelbiss house. I'm sorry to anyone that found me making our blog private inconvenient, but I looked at our stats and found out that someone in Germany is viewing our blog. I'm not too sure I'm ok with that. I feel much more comfortable controlling who can look at pictures of my family.

Another Update

I really have no idea what to title these blog entries.
Not too much is happening here in the Divelbiss household. Matt has started law school and is loving it. He comes home and always has a new case study to share. Right now I'm staying home with Joseph and doing the mommy thing :) He is getting a little more efficient at scooting... but only when he really wants something out of reach. We recently got his blood work done again. He liver enzymes are still elevated and that worries us. They are not nearly as elevated as they were a few months ago, but they are still not normal yet. What no one can answer for us is that with all the problems he had with his liver... will his levels ever be normal? We keep getting this blood test done but no one can seem to tell me what we are aiming for other than lower. I still can't start him on baby food (because of the sugar) and the problems it might cause for his liver. We have an appointment on the 14th up at Children's Memorial Hospital, so please keep us in your prayers.

Cute pictures

These pictures are a few weeks old but I'm now just getting around to posting them (sorry).


Joseph's first banana!



This is Joseph sitting up all by himself, with of course his bed head (he gets that from his father)

Updates

Well I thought it was time for an update. Joseph is now trying to crawl... and by crawl I mean he gets up on his hands and knees and launches himself forward :) It is really cute. He is also just starting on rice cereal (we had to wait due to his liver problems). Of course more of it is ending up on his face and bib, not really sure how much is ending up in his stomach. Generally he seems more fascinated with the bowl full of the rice cereal than the fact that mommy is trying to feed him. There isn't much of an update on his liver. We can't see the specialist out here because they are not covered by our insurance. We are switching to Chicago Kent's student insurance in 2 weeks and we will start our visits again then.
Matt is getting ready for law school (first day is the 16th). He ordered his books and is anxiously awaiting his first day. He is excited to start, but hesitant of the unknown that lies ahead. I am trying to absorb all the time we have together because I know that it will disappear in a few weeks.
We are loving Illinois, but we could live with a little less humidity. I'm a little scared to see our AC bill :( However, we love all the green. Matt is really looking forward to a midwestern Fall! He hasn't seen one since his mission.
Well that is about all that is going on in our lives right now. I will try to post more pictures soon. For some reason this blog website is being difficult and not letting me post pictures.

Yes Yes More Pictures

Yes I know I'm picture happy, but my baby is cute. What can I say?